I never, ever, ever write draft blog posts. You're lucky I re-read and do spell check to correct miss-spelled words from typing so fast! (kidding- kinda!). A friend of mine asked me the other day if I wrote drafts because she likes how honest my blog is and I said no. Never. I want my blog to reflect me 100% and what I am going through. I don't sugar coat anything and I am well aware that things I say may upset people or make them uncomfortable. I guess that's a risk you are willing to take by reading this. I also started this blog to help myself. I need to get a lot out in order for me to stay focused and true to myself during this process. Thirdly, I am far, far too lazy to write a draft post!
I haven't written a post in quite some time. Honestly, I didn't know what to say. Most days I have been finding to be more on the depressing side with pain and not sleeping. Last night I literally slept 2 hours. When I say I don't sleep- I really don't sleep. If you are complaining about your 4 or 5 hours I might kick your arse. Yes, you will be tired but let me tell you not sleeping more than 2-3 hours a night for over a month and a half is WAY worse.
I feel gross about myself lately. I am still taking the steroid called Decadron and I eat like a horse and it plays a significant role in why I am not sleeping. I have a meeting with my oncologist in the morning before next weeks chemo and I am going to ask her if it is imperative that I take it or not. I HATE IT!!!! I have gained over 10 lbs so far. 6 of those have been in the past WEEK. I eat extremely healthy, I walk almost every day when I can but there is no way I can stay ahead of the steroid.
Sometimes I look in the mirror and feel so ugly. Here I am, I will be 27 in 2 weeks and I am bald, feel ugly and fat and there is nothing I can do about it.
I have also been having a very very difficult time with people. I say people because some used to be friends- even some of my best friends and I literally haven't heard a word from them. They continue to spend time with our mutual friends but I am never included. I know I go to bed earlier than everyone and I get tired easily but I just simply don't get invited at all. Period. I find people to be so very very selfish.
The past month has been very trying for me. I try not to let myself get upset when I am not included, thought of or invited. It really hurts my feelings and then to hear how perfect life is for other people. I wish people could see outside of their own little bubble and think about how their actions affect others. I don't think this should only be done in my situation but I think it is a good practice in general. Think before you act. If the situation were reversed how would you feel?
I have cried a lot. I don't sleep so am always overtired and I get frustrated easily and some days just want to give up. Don't get me wrong I have an amazing family and some incredible friends- I just used to have a lot more.
When I was originally diagnosed in 2011 I was determined to beat this disease right off the bat and that was how it was going to be and now when it came back I find myself having a harder time to think the same way. I think a lot has to do with thinking that it was over with and I would never have to do this again. And on top of that I have been disappointed and let down by a lot of people so instead of being optimistic about things it has been bringing me down. A lot.
I went to reiki today which is healing touch. I have never felt better. It did wonders for my soul. I was recommended 3 books. "You Can Heal Your Life" - Louise Hay and Dreamhealer and Dreamhealer 2 by Adam.
The book by Louise Hay (there are many) is a book I highly recommend to everyone, regardless of where you are in your life or what is going on. It is a book that will change your life for the better after the first chapter.
Enough ranting for one night. I need my sleep- even if it's only 2 hours.
PS: to all of those #lhdc (long hair don't care) girls...
#nhdc (no hair don't care)... and no make up either.

I will try this again.. As my comments never seen to post for some reason.
ReplyDeletePerhaps they are just so awesome they want me to re type them all twice or five times..
Your honesty is refreshing. Life is such a roller coaster ride, tomorrow is always unknown no matter what the circumstances. I like the feeling of focusing only one day at a time. The future is always overwhelming and we always have something to worry about. Life seems unfair, some seem to have it easy, others go through hell and back. One thing is for certain- only spend time on those you love and who love you. Do not waste precious moments on those who don't count. Beauty is not long blond hair, a tanning bed, hair extensions and who is the thinnest. True beauty is defined in your heart and soul. Your bald head is beauty, and so is your true soul. I am so grateful to have you.
Laura, you are wonderful. You really know how to make me think. I really think you are amazingly strong. Not sure how I would cope with everything you are. If you ever want to come to Church with me, I will pick you up. I will continue praying for you.
ReplyDeleteDear Laura,
ReplyDeleteYou will never upset me or make me feel uncomfortable. You are the strongest person I've ever met. Beauty is not outside but inside and because of that you are one of the most beautiful person I've ever met. I think of you and your courage every day.
I am keeping you in my prayer and will be happy to spend time with you and getting to know you better. Because of you I am striving to be a better person.
Hit the "enter" key too fast. Should have post my name...
ReplyDeleteLaura,
ReplyDeleteI saw you at the hospital the other day but didn't realize it was you until I passed. I came across your blog and have been reading your story. You are an incredibly strong girl! Your story and your words are very encouraging words of wisdom to others! I think it's great that you are writing this blog for everyone to see! You are a beautiful girl inside and out! I'll be thinking of you/following your story!
Faith Black
Hey there,
ReplyDeleteI came across your blog via a friend. I wish I say or write something to make you smile or give you a hug (does that sound creepy from a stranger?). I think you look gorgeous and look not a day over 19 yrs old. For a strong woman who has endured such a hard battle - your face looks refreshing! I know it's more than looks. Your pain is real physical and mental. I am sorry your friends have abandon you - you deserve better. Just know there are many of us who have read this and want to help you or at least be a shoulder to cry on. We have been around cancer or had cancer and 'get' it to the best of our ability and want to help you or at least remind you that you are NOT and never will be alone.
<3